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Survey Items: C6Q07; C6Q0A_B; C6Q0A_C; C6Q0A; C6Q0A_D; C6Q0A_E; C6Q0A_F; C6Q08
Denominator: CSHCN age 12-17 years only
Numerator: CSHCN age 12-17 years whose doctors usually/always encourage increasing responsibility for self-care and (when needed) have discussed transitioning to adult health care, changing health care needs, and how to maintain insurance coverage; CSHCN age 12-17 years old who did not achieve this outcome
Revisions and Changes: These items are the same as in the 2005/06 NS-CSHCN. These measures may be compared across years.
Additional Notes: In order to meet outcome #6, 12-17 year old CSHCN must meet four components: 1) if a discussion about transitioning to adult care was needed it must have happened; 2) if a discussion about changing health care needs as child becomes an adult was needed it must have happened; 3) if a discussion about transitioning insurance to maintain eligibility was needed it must have happened; and 4) doctors usually or always encouraged responsibility for self-care, such as taking medication, understanding his/her diagnosis or following medical advice. If any of these conditions was not met, the child did not achieve outcome #6. All respondents with responses of don't know or refused to any item were set to missing.
Treatment of Unknown Values: Unknown values (responses coded as 'refused', 'don't know', or system missing) are not included in the denominator when calculating prevalence estimates and weighted population counts displayed in the data query results table. In nearly every case, the proportion of unknown values is less than 1% and the exclusion of these values does not change the prevalence estimates (%) and only marginally affects the weighted population counts (Weighted Est.). Exceptions are noted in the form of a Data Alert at the bottom of a results table.
History and Development: The Maternal and Child Health Bureau leads the development of the NS-CSHCN survey, indicators and performance measures, in collaboration with the National Center for Health Statistics (NCHS) and a national technical expert panel. The expert panel includes representatives from other federal agencies, state Title V leaders, family organizations, and child health researchers. Previously validated questions and scales are used when available. Respondents’ cognitive understanding of the survey questions is assessed during the pretest phase and revisions made as required. All final data components are verified by NCHS and DRC/CAHMI staff prior to public release.
C.I. = 95% Confidence Interval. Percentages and population estimates (Pop.Est.) are weighted to represent child population in US.
DATA ALERT: See an overview of Outcome #6 and its relationship to healthy development for CSHCN over the Life Course.
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With funding and direction from the Maternal and Child Health Bureau, the National Survey of Children with Special Health Care Needs was conducted by the Centers for Disease Control and Prevention’s National Center for Health Statistics. CAHMI is responsible for the analyses, interpretations, presentations and conclusions included on this site.
Suggested citation format: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved [mm/dd/yy] from [www.childhealthdata.org].